Sunday, June 7, 2009

Update on Jonah

Well we went to the Dr. on Wednesday the 28th of May. This was his first Echo since he had left the hospital. The concern was if his mitral valve was good enough size to function correctly to be able to make his heart a four chamber heart. Also to see if his left ventricle was a good enough size and funcitoning correctly.

Good news is that the mitral valve looked awesome and so did the left chamber. But there was another concern. His right valve in his right two chambers was really close the the hole in his bottom two chambers. The Dr. said there was some tissue that was connecting them. They are concerned that if they go to reroute the aorta into the left lower chamber that it is to close the that valve and it may ruin it. So their for. He emailed a Dr. in Boston at the John Hopkins Hospital there because he said they have more experience. He got an email back from him and he was interested in looking at our case. Our Dr. fedex all the file to him and was waiting to here from him. Then he was going to take it to the meeting where all the Cardiologists and the Surgeons get together and discuss each case together to decide what is best. The Dr. Arrington is going to call and let us know what they have decided.

The optitons are if they can make his heart a four chamber heart or to make it a three chamber heart. The best option is of course a four chamber heart. But they did say that if he had to have a three chamber that his life span would be greater than others because his left ventrical is a pretty good sized. Most three chamber hearts work only with on ventrical. So all of it is good new we are just waiting to if we go to Boston or here. The Surgery will probably be at the end of July or August.

2 comments:

jilljohnson said...

Please let us know when you find out. We are praying for Jonah and your family. I love the family pictures, they are so cute. What the picture perfect family.

Angie said...

One step at a time. The Lord only gives you what you can handle, so He must know that this experience is something you can handle and will only make you stronger. Let us know of any more updates.