HOME!!

There is never any place like home. We have our little family back together. The trip home seemed long only because I was anxious to get there. Thanks to my mom she decorated the house and made a sign that said "Welcome Home my Fam-o-wee" this is how Faithy says it. Loved it. Great to have family that supports you so well.

Now for the healing part for Jonah. He is doing good but will not eat very well and that is not a good sign. We have Dr.s appts. today and Thursday for him to get his stitches out. I will have to post some pictures of his battle wombs they are not very pretty right now.

Well it is great to be home!

Jonah Updates Again!

Things are going well. We have found out that his left vocal cord is not working. The Dr. said that it is one of the things that could have happened during surgery. His pace maker is in and working well they said. We have one more chest tube to get out before we can go home. This means we will be able to come home with in days. Wahoo!!! I can't tell you how much I am ready to be home.

They moved us up to 3 west on Wednesday. This is one step closer to going home also. I talked to Faithy and asked if she was ready to go home she said yes and wants to play with Jonah. How sweet is that.

Greg and I took a break from the hospital and went up to San Fransico today to see some sights before we went home. We were this close why not when you have a babysitter that is getting paid to take care of your kid. (JK) The nurses here are great and we love them.

First signs that jonah is coming back to his self. There are about three nurses that are now his girlfriends and they fight over who is going to take care of him when they are on schedule. It very funny we have become the party crib the nurses come over and talk and watch Jonah when they don't have andy thing pressing.

This is the first time that Mandi got to hold Jonah form the time that we got here at the hospital. It was a good day for all. The nurse let Mandi hold him and later the docs said that it was maybe not a good idea because the pace maker wires are still in.

Pace Maker

We came in today to the CVICU where Jonah was and plans have changed. They were going to take him for a pace maker on Tuesday and do a swallow study today. Well the nurse came in and said that they were doing the pace maker today at 2 or 3:00pm CA time. So they are postponing the swallow study and will do that another day. They are also going to do an ENT test where they put a scope down his thoat to look at his vocal cords. Which will be good to see how things are working because they have been thickening his formula because it is easier for him to swallow and not cough everytime he eats. But besides that I think Jonah is really sick of just laying in his bed for 12 days now. I can't hold him because of the pacing wires. But secretly one of the Dr.s let me hold him for 10 minutes while he was standing right there. YEH! I will let you know how the surgery goes today. Also try and put more pictures on somewhere.

Thankfulness in small things

Being in California you take for granted the things that you have convenience in. Such as family being close to see and to know where they are supporting you all the way. Not saying they are not but the closeness is great. You also know that there are others that have the same beliefs you do. So therefore to give priesthood blessings and church especially seeing General Conference. We are so grateful that Jonah is here and has made it through everything he has. Having a pace maker is not the end of the world but it would be much better to not have one at all. We gave him a blessing last night and it was good. We hope and pray all will work as needs to for him. Getting a pace maker will just delay his recovery and we will be here a little longer for that reason. He doesn't have anymore chest tubes YEH!

You also realize that when you are in the hospital you are grateful for the trial you have and not others. Also for the beliefs that you have and the love and support you have from others. There are people here from all over the world and are here alone. Thank goodness for family and loved ones.

I do really miss my little girl. I know she is being well taken care of but it just isn't the same having her so far away.

Thank goodness for our life's and for the faith we have in our gospel and Heavenly Father. I hope non of you take that for granted.

Jonah's Pictures of Surgery

Here he is without the respirator. YEH! Now he really looks like my little boy. He is doing well just two big hurdles to over come. Keep him in your prayers and all will be well.

Little Jonah right after his eight hour surgery. Brings back a lot of memories. But he looks a lot more pink than he used to.

This is Dr. Hanley the one who did the surgery. He was awesome and took care of all the things that needed to for little Jonah. Love him.

This is the little gown they gave him to wear right before surgery. It had lions and tigers and bears. OH MY. Way to cute for going into surgery to prepare them.

Here is Jonah on his first airplane ride.

Jonah Updates

Jonah is doing well he got one of the chest tubes out this morning and they are going to take the repirator out some time today. YEH! Then he won't be so sudated. The heart block still has not come back. Hopefully in a few days when the swelling gets to minimal. All is well Greg flys home today which will be hard. But that is life and we will be fine. I am still trying to find somewhere to put pictures on. Sorry for the delay. We also can't find General Conference. Hope it was good we will read it when it comes out.

Surgery

As we left for CA the leaves look glorious in the canyon with the change in color. It made me think that as we were leaving how are lives will also be changing all in a good way. We all did good on the flight and all arrived safely.

Surgery we good and Jonah is doing great. The Dr. said that he accomplished all that he needed to. We will post pictures later but as far as an update. Their are only a couple of concerns. 1. is heart block which is when the conductors in you heart are not responding to each other to make the chambers pump the blood. He is right now on a pace maker but the Dr. seems very confident that it is only from swelling that they cannot read or respond to each other. 2. is when they repaired his arch that the left vocal cord goes around it and may have been damaged. So we will see when they take the respirator out how things will go with that. It is not life threatening and can be fixed. Dr. said that it may be alright at the same time. Only time will tell. (of course that how it is with everything.)

We did get into the Ronald McDonald house so we will be going there today. What a blessing. I know that our prayers have been answered that everything has been going well. You can see the daily Miracles that Heavenly Father sends each day. Love you all and keep us in our prayers.

I will put pics on soon.